Wednesday, October 30, 2013

Please don't assume................

I've been debating for a week or two whether to write about this or not.  It's not the sort of subject I usually talk about but it keeps coming back into my thoughts so I think that means that I need to share this story. 

As I wandered through the grocery store one afternoon(probably trying to find real food in the land of artificial & convenience) I noticed a lady in a wheelchair struggling with the bathroom door which happens to be a very heavy one. An employee offered to help & she graciously accepted.  The employee held open the door the lady entered the bathroom & expressed her appreciation.  All's well.......but then it happened. The helpful employee reminded her to lock the door after herself!!!! I was astonished.  In a single "helpful moment she unknowingly & effectively reduced a capable, independent adult who only needed a hand with a heavy door into a child.

..............................& I wonder why people underestimate my child?

How do you deal with people putting limits on or making assumptions about your child or loved one's abilities?

Wednesday, October 23, 2013

Trisomy 21 & Choline in Pregnancy

Interesting article - please ignore the references to "normal" babies.  

Thursday, October 10, 2013

Brachiation Ladder Tutorial

This is the unedited version of this post. I have promised it to a few people though so I wanted to get it up right away. I am going to be busy & not able to get on the computer much for the next week so I thoughts I'd just post it as it is & try to read over it again later.  It's almost midnight & I'm falling asleep at the keyboard so there's probably a few typos too :)  If you have any questions or anything doesn't make sense please message or email me & I'll try to fix it or explain better.

I've been wanting to build K a brachiation ladder for quite a while. I even bought the dowel & hardware last fall but kept putting of building it because with the directions in Glenn Doman's Physically Superb book you need to drill holes & without a drill press it is hard to line them up just least for a carpenter with my experience ;) . I'm sure I would have ended up having to drill out the holes to get the dowels to go through & of course they wouldn't have been as snug.

Through the summer we have a old set of monkey bars in our yard but as fall closed in this year I again thought about ways to make a brachiation ladder. Being able to use them indoors makes a huge difference here in Canada where we have fairly long & cold winters. I posted the question on the Unlimited Potential (UP) group as well as the Down Syndrome Action Plan group. I got a great response from both groups & on the UP forum there were even a bunch of pictures posted. Check it out here.

None of the ideas seemed exactly right for what I wanted to do but they did get me thinking & I came up with a plan to make a brachiation ladder that was a little simpler to make.

This tutorial is for a ladder that is mounted directly to a wall or across a narrow room.  The plus side is that you don't need to build the end supports but the negative is that it's not as easily adjustable.

note:  I was concerned that because our ladder was going to be up against the wall that it would need to be a little wider.  As it turns out that really wasn't a problem.  This tutorial is to make a little wider ladder but you could always make the end boards & dowel a little shorter to make the ladder a little more narrow.  Basically you can just build it to what suits you & your child.

First of all - this brachiation ladder is meant to be installed across a narrow room, hallway or any space that isn't too long.  Before you get started you need to measure the length of your space to make sure you buy long enough boards.


Tools - drill, hand sander, saw, tape measure, level, an extension cord will be handy

Materials -

Two long - 2X6's - This type of brachiation ladder is meant to be fitted into the wall or across a narrow room  so you will need to measure your space & buy the appropriate length boards

Two 23"  -  2X6's -  I explained about K's physical program & K batted her beautiful eyes at the nice lumber yard guy & he walked over to his scrap pile, found a large 2X6 & cut it into 3 large chunks - way more than we needed!

tip - many hardware stores will cut the boards for you after purchase. Measure carefully though as you want it to fit very snugly into the space you are putting it in.

1" dowel -for the length of ladder I was making I needed 3 lengths of 1" dowel.  Again, this may vary depending on the length of your ladder space & which lengths are available at your hardware store.

3/4 " hole straps - don't buy 1" ones like I originally did as they are too big & don't hold the dowel tight enough - even these were a little large (as you'll see as you get a little farther in the tutorial) you may even be able to buy 1/2 " ones but check first to see if the dowel fits through.

Sandpaper - I bought a few kinds - some courser & some finer grit

twenty four - 3.5" screws -  12 for putting the ladder together & about another dozen to secure it to the wall.

approximately forty eight - 1.5" screws

I just noticed that our newly adopted little dog & one of K's best buddies is in this picture.  Isn't she cute?

The first thing that I did, which I don't have a picture of is to sand all of the boards excluding the dowel, first using the coarser sandpaper, then the finer grit.

Pre drill 3 holes on each of both long 2X6's.

Cut the shorter boards to 23 " & use the 3.5 " screws to fasten them to the longer boards using the predrilled holes.

measure the dowel & cut to 23"

Re sand the spot that your daughter drew on because she was being a carpenter & had to write some fancy symbols on the wood -  normally I leave this kind of artwork but not this time :)

next you will need the hole straps.............................I mean clampy thingies (my brother told me to use that word in my tutorial as that's how I described them to him when telling him my plans for building the ladder).

This is what makes this method so much simpler than a traditional brachiation ladder.

Now here's where things get really technical ;)    for those of you that don't already know, we live on a farm.  Anything that can't be fixed with duct tape, binder twine or crazy glue can probably be fixed by bashing it with a hammer :)

The clampy thingies were still a little to loose so I bashed them with a hammer to make them a little flatter. 

Mark the sides of the ladder frame every 10" (or whatever width you decide you want).

After bashing the clamps with the hammer use the clampy thingies them to attach the dowels to the 2X6 frame with the 1.5" screws. Make sure they fit very snugly.  You don't want the dowel twisting as your child is brachiating. If they are a little loose then you need to bash the clampy thingies a little harder. 

I seem to have misplaced my copy of Glenn Doman`s Physically Superb book (I can`t seem to find it at the Gentle Revolution bookstore so this is a link to it on Amazon) recently so I didn't use their measurements. I did go by the measurements on another blog but since K is used to her monkey bars that have a very wide spacing & because she's growing & I want it to last longer I made about 10" apart with each end being slightly shorter to make the dowels all fit on the length of our board.  This seems to work very well for her.

 Continue to mount the dowel along the full length of the brachiation ladder.

At that point the main frame is done & it can be mounted to the wall of whatever room you want it in. If you have a stud finder this makes the job of screwing the ladder to a secure place on the wall a lot easier.  K's Daddy & 2 big sisters helped with this which made the job go much more smoothly.

K loves her new brachiation ladder!  We've had it up for about a week & she plays on it often including a before bed but after story session. She is never the first up in our house but she is often up as soon as she hears someone stirring which is usually around 6:45 on a school morning. Today at around 6:15 my husband & I heard some movement from in her room.  Several minutes later the light flipped on - yes she had woken up early & was brachiating in the dark before turning on the light! 

So far we've been mostly just letting K play on it & most of my pics look something like this:

"Look Mom! I'm hanging upside down!" 

Here is a link to another tutorial which is still modified but is closer to the Doman model

Sunday, October 6, 2013

Guess What I Did Today?????

Brachiation ladder tutorial to follow!

This is my version of a Doman brachiation ladder & took a couple of hours total.  It only cost about $ for all of the materials. We mounted it directly to the wall which means that it doesn't take up as much space, was quicker to build & cost less. That's K's loft bed that you see to one side of the ladder.  It is pushed up against the wall now so she does loose about a foot & a half of bedroom space but even in her fairly small room it's not too bad for space.

The only downside I've found so far is that literally 30 seconds after I put K to bed tonight I heard her get out of bed to use it...........................but who can blame her?  Your own set of monkey bars in your bedroom is pretty hard to resist!

I took pictures as I built it so I'll post a tutorial soon.

Thursday, October 3, 2013

Wow! What a difference!

About 6 years or so ago when I was looking into neurodevelopmental programs & still in the stage of trying to decide if this was a path I wanted our family to follow, there was a forum called Child Brain.  I spent quite a bit of time of that forum reading (not actually typing anything because I was too "online shy" at the time) & checking out past posts.  I am forever grateful for those moms & dads on Child Brain because they were my first chance to see what a neurodevelopmental program was really like.  They shared the good & the bad, the challenges along with the frustrations. They gave me a real picture of what life on program was like.  Unfortunately the site crashed a couple of years later. It was months before they were finally able to get it online again, no one seemed to find their way back & the site was soon shut down permanently.

One important theme that I read over & over on this site was how important the physical component of a neurodevelopmental program is. The wise moms on Child Brain always insisted physical activities like creeping, crawling & brachiating was more important than the academics, so if you could only get part of your program done, try to give the physical stuff priority. If you don't help the child's brain to become more organized then the academics just aren't going to sink in.

This spring due to some confusion scheduling the appointment (probably my fault) K did not end up having her regular neurodevelopmental evaluation so I created my own program for her. I included math, reading, speech (sentences structure as well as we are working on the TH sound), auditory & visual processing, thinking skills, handwriting & a bit of sensory stuff. The biggest change that I made was that I really ramped up the physical activities, namely creeping, crawling & brachiating.

The interesting thing is that I just talked to K's neurodevelopmentalist yesterday after implementing this program for several weeks & she said that they are also starting to add more physical activities to their programs. K's next evaluation is in early September & there will likely be a lot more physical activity on it. I'm so glad to hear that my instincts are correct.

It has been only a few weeks & already I'm seeing changes.  The biggest change has been in K's handwriting.  It is much more legible than it was a few months earlier.

She also seems stronger with her digit spans & her upper body strength has definitely improved as well! I'm so glad we tried a back to basics approach.

Now for the really amazing part!

I have been noticing lately that KJ,  my 10 year old doesn't have a very coordinated crawl . I talked her into joining us in creeping, crawling & brachiating this summer. shhhhhh..................don't tell her friends that part of the story ;) 

Anyways, we didn't see a huge change over the summer.  The only thing I really noticed was that by the end of the summer her reading interests had changed & she suddenly became a voracious reader like my other 3 girls. It was never a fight to get her to read but she just never seemed to have the same passion they did - she would often read comic books & graphic novels.  Suddenly I realized that she was reading everything & anything including a book my 14 yo just read last year!  I wondered if all that physical program could have had an effect but reasoned that it could also just be a coincidence.

Fast forward to early September & I am amazed at the difference!  We did nothing that involved writing this summer so I as unaware until school started however K's handwriting has improved greatly!  According to K, last year her teacher had to constantly remind her to write neatly so she could read it.  She also made a number of letter reversals which made her writing hard to understand.  This year her teacher keeps saying "Wow! you're writing is beautiful!"  She is also finding spelling tests much easier as well as social studies.  I wonder if the latter 2 could just be because she is so excited about the improvement that she is working harder however there is no disputing the handwriting - last spring even when trying her absolute hardest she could not write as neatly as she is doing today when not giving much effort.

Since last year I have been having KJ write out her spelling words on flashcards to teach to K. Here are examples of last spring's writing compared to now:

& a couple more examples - these are pretty average, not even the messier ones!