Getting Program Done

 One of the biggest challenges to getting a neurodevelopmental (ND) program done is finding the time to get everything accomplished. There have been times when this has been really difficult for us but it is often possible to  incorporate program into daily life. K herself is in dance & downhill skiing, & her sisters are active in several sports as well. It's pretty hectic even without trying to get any program done!

First of all it is important to know that it is okay to take a break if you need to.  There have been times when life has gotten so busy that  we needed to take a short break.  I find it best to plan a set date to start up again though as it's easy to put it off & days turn to weeks or even months. I've heard it said that doing a neurodevelopmental program is not a sprint but a marathon so you need to pace yourself & I think this is very wise advice.

Equally as important, it's okay if you don't accomplish what you want to in a day.  Let it go!  :) Tomorrow is a new day - wipe that slate clean & try again. 

 It's okay to be flexible too. We've occasionally tried a different , much less intensive program when I knew things were going to be extremely hectic for a short time. 

When I went back & read over this list it looks like we are constantly doing ND activities & fitting something in at every moment of the day.  This is not true.  There needs to be balance in life & although ours can be very hectic K gets lots of free time to do her own thing too.

The following list is a work in progress so I'd really appreciate if you can add your ideas to in the comments or by email to jtkkmom@gmail.com & I'll add them to this list so others can benefit.

Some  things can be incredibly simple such as playing audio stories, classical music or other music recommended by your neurodevelopmentalist while your child is playing.

The  biggest thing that helped me was to associate a program activity with some part of our daily routine.  We would not forget to eat a meal or change a diaper so we did a program activity with each of these.

When K was very little, even  before we started an ND program, we tried to expose her to all kinds of sensory input.  Dabbing a little essential oil or her or my clothing was very a very simple way to help accomplish this.

After the bath  was the perfect time to fit in some baby massage.

Potty training is a great time to do some activities while you have a captive audience! Flashcards, encyclopedic knowledge, even eye exercises!

& again with that captive audience............... we've used bath time  to get some of the above program activities done too.

Fitting program in to your daily life can mean simple things like tossing the stroller & letting your child walk even when it mean that a trip to the store takes a bit longer,

Instead of lifting your child up onto the change table, high chair, car seat, etc, have them grasp your thumbs & hold on as you lift them.

Label items in your house so instead of a planned flashcard session, so you & your child can read them as you come across them in your house during regular daily activities.

Our schedule changes but at times I have been able to get oral motor work done as I am making supper.

We  try to combine activities as well & that is how we are accomplishing our oral motor exercises at the moment. K has special glasses that she uses each day while watching TV or playing on the iPad.  While she is doing that I often have her do one of her oral motor exercises.                                                                                                                                                                      
We do digit spans each time K wants the iPad or gets into the vehicle.

Now that K is 6 she can be a little more independent at some activities.  In the morning when I am making breakfast I have her work on her math book as well as do some handwriting practice.  By the time she's done breakfast is usually ready too.

We try to incorporate crawling into other activities too such as crawling while we pick up toys.

 When she has a question we describe things in more detail than I would have thought to explain to my older kids.  Like in Glenn Doman's book where he says Don't tell your child its a doggy.  Tell them it's a breed of dog called a Golden Retriever, etc. etc. Give them  lots of specific information on the breed of dog. It only takes a few seconds longer to give a detailed explanation but the knowledge adds up.

While I'm not a fan of letting your child sit in front of a TV/computer screen all day & I prefer to watch with my child so I can be engaged with them, there were times when I had K watch BrillKids Little Reader to teach her words, concepts, encyclopedic knowledge.  I created my own playlists which had the content I wanted to work on with her.  Here is a link on their program & very generous discount program.

That is all that I can think of at the moment but please remember to share your ideas in the comments or send to my email. I need some new ideas too!

Here are some ideas that some other moms have shared:

Melissa said:
1. Know your program really well so it is easy to include activities when walking on the beach or playing. Just adding some jumping and ball throwing for example if that is a part of your program.
2. I write my program activities up on a big white board or on 4x6 index cards in big letters and place it somewhere I can see it easily. I prefer the index card method as then I can group and arrange and change the orders of the activities. I stick them on the door or wall with blue tack. Then when I am sitting down nursing my youngest I can look over the program and keep myself familiar. I clump them in logical groups to me so that I can remember them more easily when I am out, with the most important at the top so I know to work my way down. As I am doing program with toddlers, I cannot stick to a rigid schedule, so this allows me just to glance at the board and quickly pick the next activity that I think will be accepted well.
3. You mentioned this, but tagging program activities to daily activities is a great idea. Flash cards at the start of a meal time - done. I had trouble encouraging my son to do his processing activities, but he loves his supplements and gets many throughout the day, so now they have become a reward, he does a quick activity and gets his fish oil! It is great as suddenly he has a need to try.

Jennifer posted some great ideas on FaceBook:
We use car rides for a lot of our program. I have my 6 yo and 9 mo on program. We use the car for audiobooks, iPad apps, and audio processing. I also keep a small therapy bag in the car and let my husband drive most of the time (we work together). This allows me to sit in back with my little one and read books, do flashcards and anything else I can do while she's sitting down. Great blog post. Thanks for sharing!

I forgot to mention it in my post but we like to do program in the vehicle too.  Oral motor, eye exercises, & now that she is older I can hand K her math book or some handwriting sheets to do. 

Brachiation Ladder Tutorial

This is the unedited version of this post. I have promised it to a few people though so I wanted to get it up right away. I am going to be busy & not able to get on the computer much for the next week so I thoughts I'd just post it as it is & try to read over it again later.  It's almost midnight & I'm falling asleep at the keyboard so there's probably a few typos too :)  If you have any questions or anything doesn't make sense please message or email me & I'll try to fix it or explain better.

I've been wanting to build K a brachiation ladder for quite a while. I even bought the dowel & hardware last fall but kept putting of building it because with the directions in Glenn Doman's Physically Superb book you need to drill holes & without a drill press it is hard to line them up just right...............at least for a carpenter with my experience ;) . I'm sure I would have ended up having to drill out the holes to get the dowels to go through & of course they wouldn't have been as snug.


Through the summer we have a old set of monkey bars in our yard but as fall closed in this year I again thought about ways to make a brachiation ladder. Being able to use them indoors makes a huge difference here in Canada where we have fairly long & cold winters. I posted the question on the Unlimited Potential (UP) group as well as the Down Syndrome Action Plan group. I got a great response from both groups & on the UP forum there were even a bunch of pictures posted. Check it out here.


None of the ideas seemed exactly right for what I wanted to do but they did get me thinking & I came up with a plan to make a brachiation ladder that was a little simpler to make.

This tutorial is for a ladder that is mounted directly to a wall or across a narrow room.  The plus side is that you don't need to build the end supports but the negative is that it's not as easily adjustable.

note:  I was concerned that because our ladder was going to be up against the wall that it would need to be a little wider.  As it turns out that really wasn't a problem.  This tutorial is to make a little wider ladder but you could always make the end boards & dowel a little shorter to make the ladder a little more narrow.  Basically you can just build it to what suits you & your child.
 

First of all - this brachiation ladder is meant to be installed across a narrow room, hallway or any space that isn't too long.  Before you get started you need to measure the length of your space to make sure you buy long enough boards.


Supplies

Tools - drill, hand sander, saw, tape measure, level, an extension cord will be handy

Materials -

Two long - 2X6's - This type of brachiation ladder is meant to be fitted into the wall or across a narrow room  so you will need to measure your space & buy the appropriate length boards

Two 23"  -  2X6's -  I explained about K's physical program & K batted her beautiful eyes at the nice lumber yard guy & he walked over to his scrap pile, found a large 2X6 & cut it into 3 large chunks - way more than we needed!

tip - many hardware stores will cut the boards for you after purchase. Measure carefully though as you want it to fit very snugly into the space you are putting it in.

1" dowel -for the length of ladder I was making I needed 3 lengths of 1" dowel.  Again, this may vary depending on the length of your ladder space & which lengths are available at your hardware store.

3/4 " hole straps - don't buy 1" ones like I originally did as they are too big & don't hold the dowel tight enough - even these were a little large (as you'll see as you get a little farther in the tutorial) you may even be able to buy 1/2 " ones but check first to see if the dowel fits through.

Sandpaper - I bought a few kinds - some courser & some finer grit

twenty four - 3.5" screws -  12 for putting the ladder together & about another dozen to secure it to the wall.

approximately forty eight - 1.5" screws



I just noticed that our newly adopted little dog & one of K's best buddies is in this picture.  Isn't she cute?

The first thing that I did, which I don't have a picture of is to sand all of the boards excluding the dowel, first using the coarser sandpaper, then the finer grit.

Pre drill 3 holes on each of both long 2X6's.

Cut the shorter boards to 23 " & use the 3.5 " screws to fasten them to the longer boards using the predrilled holes.

measure the dowel & cut to 23"

Re sand the spot that your daughter drew on because she was being a carpenter & had to write some fancy symbols on the wood -  normally I leave this kind of artwork but not this time :)

next you will need the hole straps.............................I mean clampy thingies (my brother told me to use that word in my tutorial as that's how I described them to him when telling him my plans for building the ladder).

This is what makes this method so much simpler than a traditional brachiation ladder.

Now here's where things get really technical ;)    for those of you that don't already know, we live on a farm.  Anything that can't be fixed with duct tape, binder twine or crazy glue can probably be fixed by bashing it with a hammer :)

The clampy thingies were still a little to loose so I bashed them with a hammer to make them a little flatter. 

 

Mark the sides of the ladder frame every 10" (or whatever width you decide you want).

After bashing the clamps with the hammer use the clampy thingies them to attach the dowels to the 2X6 frame with the 1.5" screws. Make sure they fit very snugly.  You don't want the dowel twisting as your child is brachiating. If they are a little loose then you need to bash the clampy thingies a little harder. 

 

I seem to have misplaced my copy of Glenn Doman`s Physically Superb book (I can`t seem to find it at the Gentle Revolution bookstore so this is a link to it on Amazon) recently so I didn't use their measurements. I did go by the measurements on another blog but since K is used to her monkey bars that have a very wide spacing & because she's growing & I want it to last longer I made about 10" apart with each end being slightly shorter to make the dowels all fit on the length of our board.  This seems to work very well for her.

 Continue to mount the dowel along the full length of the brachiation ladder.

At that point the main frame is done & it can be mounted to the wall of whatever room you want it in. If you have a stud finder this makes the job of screwing the ladder to a secure place on the wall a lot easier.  K's Daddy & 2 big sisters helped with this which made the job go much more smoothly.

K loves her new brachiation ladder!  We've had it up for about a week & she plays on it often including a before bed but after story session. She is never the first up in our house but she is often up as soon as she hears someone stirring which is usually around 6:45 on a school morning. Today at around 6:15 my husband & I heard some movement from in her room.  Several minutes later the light flipped on - yes she had woken up early & was brachiating in the dark before turning on the light! 

So far we've been mostly just letting K play on it & most of my pics look something like this:

"Look Mom! I'm hanging upside down!" 

Here is a link to another tutorial which is still modified but is closer to the Doman model

John Marrs - An Inspiring Young Man With Down Syndrome

Over 4.5 years ago, after we received K's diagnosis of Down syndrome, I went on a long research binge.  Most of what I read was " They will reach their milestones in their own time."  I just could not be content with that, & thought there had to be something more.  I searched what seemed to be the furthest darkest corners of the internet scrounging up any piece of information I could find before I found a few kids with Down syndrome that I would consider to be truly inspirational.  Perhaps the stories were there, but I just found it difficult to find them.  At first the few stories I found seemed to good to be true, but they got me researching more & believing that perhaps there was more that I could do than to just wait for my daughter to do things " in her own time."

One of the first truly inspiring kids I learned about is John Marrs.  Although I have never met this family, I will always be grateful for that first glimpse of hope that I got when reading their website.

Here is a link: John Marr`s page Make sure you check out the whole site. It's full  of information & John's poem is wonderful! TNI & a neurodevelopmental program as well as a loving family with high expectations have contributed to John's development.

The reason that I thought to post this is that John's name has come up recently on the internet because he is being inducted into the National Honor Society. Check out Got Down syndrome`s blog for the story.

The New Unlimited Potential Forum is Going Strong!

In case you are unaware, there is a new forum dedicated to helping parents who are interested in a neurodevelopmental approach to helping their children achieve their full potential. Other topics include supplements, nutrition, early learning & any other (mostly non mainstream) therapies that parents are interested in.  The forum just got started this fall & already has almost 120 members! It is a public group & a very supportive bunch, so please feel welcome to join.
Hope to see you at the Unlimited Potential forum!

New Forum

This just a quick note to let you know that there is a new forum called Unlimited Potential. It is for parents of children who are interested in using a neurodevelopmental approach as well as other alternative rherapies to helping their children achieve their full potential.

Here is the link:

http://community.babycenter.com/groups/a6729133/unlimited_potential

Neurodevelopmental Organizations

We have been doing a home program with K since she was A few months old. Shortly after she turned 3, we were fortunate to be able to take K for an evaluation through ICAN and have a program set up for her. I feel K did fairly well with our homemade program, but I am really pleased to finally take her to a neurodevelopmentalist (ND) because her program is now so specific to her. There are so many areas that we can now work on that I was either unaware of, or had no idea how to address. I have been sharing details of our home program, however I will not share any details of the program she has now as it is designed specifically for K and may not be beneficial to another child.

Here are some links to the ND organizations that I am aware of and like always, I appreciate your comments and extra information, so if you know of some others, please leave a comment.


ICAN - International Christian Association of Neurodevelopmentalists -

http://d473662.u33.truepath.com/


The institutes for achievement of human potential -

http://iahp.org/


National Association for child development -

http://nacd.org/index.php

NACD telephone seminars are available as podcasts!

NACD is one of several neurodevelopmental organizations.  Here is a link to their mini site on Down syndrome if you would like to learn more:

http://downsyndrome.nacd.org/index.php

I had heard that NACD was doing a series of telephone seminars a couple of months ago, but was away from home each time they were on & couldn't listen to them.  I just found out that they are available as podcasts & am thrilled to be able to listen to them now.  I downloaded them this morning &  have only had a chance to listen to about 10 minutes of the first one on Down syndrome, but so far I am really enjoying it.  I appreciate the fact that they waste no time and start talking about important concepts right away. Here is a link so you can enjoy them too:

http://itunes.apple.com/us/podcast/the-national-association-for/id426566512?ign-mpt=uo%3D4